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[The Role of Coordinators for Intractable Diseases in Japan]
1Division of Nursing Sciences, Department of Health Sciences, Graduate School of Medical Sciences, Kyushu University.
None:
Coordinators for intractable diseases are deployed in 44 prefectures across Japan as part of the National Intractable Disease Countermeasures program, totaling 65 coordinators (as of May 2025). They handle a wide range of consultations, including coordination with medical institutions and responses to inquiries regarding medical care. Although the presence of these coordinators is highly valued in intractable disease medical settings, their activities vary considerably depending on the needs of each prefecture. Establishing a system to educate and support these coordinators, along with ensuring the quality of their training, remains a key challenge for the future.
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