[Supporting Health Care Transition for Patients with Childhood-Onset Chronic Conditions: Within Intractable Disease...

The establishment of the transitional care support centers for patients with childhood-onset chronic conditions has steadily progressed. Committees on transitional care from pediatric to adult healthcare were established by the Japanese Society of Neurology in 2020 and by the Japanese Society of Medical Networking for Intractable Diseases in 2022, and these committees have worked in close collaboration. The framework for transition support to adulthood is defined by the Intractable Disease Control Act and the Child Welfare Act, while specific operational details are provided in guidelines and handbooks, together with multiple consultation and support systems. To ensure an appropriate transition that respects patients' wishes, it is essential for all stakeholders to share information and collaborate in providing support.