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Family Caregivers' Experiences and Needs When Caring for Women With Gynecological Cancer: A Scoping Review
Mulhaeriah Mulhaeriah1, Yvonne K Parry, Lua Perimal-Lewis
1Author Affiliations: College of Nursing and Health Sciences, Flinders University, Bedford Park, Adelaide, SA, Australia (Mulhaeriah and Sangkala); Faculty of Nursing, Hasanuddin University, Makassar, South Sulawesi, Indonesia (Mulhaeriah and Sangkala); Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, Bedford Park, Adelaide, SA, Australia (Parry, Perimal-Lewis, and Ankers); UCL, Integrated Community Child Health, Policy & Practice Department, University College London, United Kingdom (Parry); College of Science and Engineering, Flinders University, Adelaide, SA, Australia (Perimal-Lewis); and The EduArt Centre, Palacký University, Olomouc, Czech Republic (Perimal-Lewis).
Background:
Family caregivers play a crucial, demanding, and often complex role in the care of women with gynecological cancer. However, there is limited evidence focusing on the needs of family caregivers caring for women with gynecological cancer.
Objectives:
This study aimed to map and summarize the available evidence on family caregivers' experiences and needs when caring for women with gynecological cancer.
Methods:
A scoping review, using the Askey and O'Malley framework and the Joanna Briggs Institute's methodology, assessed published studies from January 2012 to May 2025 in databases CINAHL, PubMed, Cochrane Library, PsycINFO, ProQuest, SCOPUS, and Web of Science. Inclusion criteria included studies that reported qualitative findings on the needs of family caregivers for women with gynecological cancer. A thematic synthesis, using NVivo software, was used to analyze selected articles.
Results:
Sixteen studies were included in the review. Eight supportive care needs dimensions for family caregivers of women with gynecological cancer were identified and thematically grouped, including: physical needs, psychological and emotional needs, sexual needs, family or social support needs, healthcare services and facilities' needs, information needs, spiritual needs, and practical needs.
Conclusions:
This study highlights the importance of further research to better understand the unique needs faced by caregivers in this context.
Implications For Practice:
Nurses have a vital role in supporting family caregivers by conducting a comprehensive assessment of their needs. Providing holistic care and targeted support can enhance caregivers' quality of life and empower them to fulfill their roles in a sustainable and meaningful way.
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