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From Methodological Challenges to Recommendations for Future Practice: Lessons From an Ethnographic Study With People

Karina Nissen Frøkjær1,2,3, Siri Lygum Voldbjerg1,2,3, Tine Fristrup4

  • 1Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.

Journal of Applied Research in Intellectual Disabilities : JARID
|June 21, 2026
PubMed
Summary
This summary is machine-generated.

This study offers methodological recommendations for inclusive qualitative research with people with intellectual disabilities, emphasizing tailored approaches to overcome challenges and amplify participant voices.

Keywords:
inclusive researchintellectual disabilityinterviewsmethodologyobservationsqualitative research

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Area of Science:

  • Disability Studies
  • Qualitative Research Methodology
  • Social Sciences

Background:

  • Qualitative research with people with intellectual disabilities faces significant methodological, social, and ethical challenges.
  • Existing approaches often fail to amplify the voices of individuals with intellectual disabilities.
  • There is a need for innovative and inclusive research methodologies.

Purpose of the Study:

  • To provide methodological recommendations for conducting inclusive qualitative research with people with intellectual disabilities.
  • To critically reflect on and discuss the challenges inherent in this research area.
  • To offer insights for adapting research practices to better include participants with intellectual disabilities.

Main Methods:

  • The study employed a critical reflection and discussion framework.
  • Analytical lens inspired by inclusive research and critical disability studies.
  • Consideration of challenges in inclusion, consent, observation, interviews, and expert panel involvement.

Main Results:

  • Researchers should adapt and tailor research methods for intellectual disability populations.
  • Adopting an inclusive approach and establishing prior familiarity are crucial.
  • Multimodal strategies or alternative methods, like the sensory-dialogical approach, are recommended over verbally dominated ones.

Conclusions:

  • The paper contributes to the field of research methodologies for intellectual disability research.
  • Despite advancements, substantial challenges persist in conducting inclusive research.
  • Future methodological developments are essential to further enhance inclusivity and participant voice.