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Understanding chronic obstructive pulmonary disease-related loneliness: a scoping review
Camilla Askov Mousing1, Dorthe Sørensen1, Maiken Bay Ravn2
1Research Centre for Care and Rehabilitation, Department of Health and Society, VIA University College, Aarhus, Denmark.
Loneliness in Chronic Obstructive Pulmonary Disease (COPD) is complex, involving social isolation and feeling marginalized. Rehabilitation needs to address these emotional and existential aspects for better patient care.
Area of Science:
- Pulmonary Medicine
- Psychology
- Social Sciences
Background:
- Loneliness in Chronic Obstructive Pulmonary Disease (COPD) is increasingly recognized but poorly understood.
- Existing rehabilitation programs may not adequately address the multifaceted nature of loneliness experienced by COPD patients.
Purpose of the Study:
- To characterize emotional, social, and existential loneliness in individuals with COPD.
- To define the unique aspects of loneliness as experienced by people living with COPD.
Main Methods:
- A scoping review guided by the Joanna Briggs Institute methodology.
- Systematic literature search across seven databases followed by stepwise study screening.
- Data extraction to identify loneliness characteristics and develop analytical themes.
Main Results:
- Seventeen publications were included in the review.
- Key characteristics of emotional, social, and existential loneliness were identified.
- Four themes emerged: reduced social contact, being housebound, the "lonely battle" of COPD, and feeling like a "second-class person."
Conclusions:
- COPD-related loneliness is a complex, evolving experience.
- Current rehabilitation insufficiently addresses the emotional and existential dimensions of loneliness.
- Rehabilitation must explicitly target COPD-related loneliness with tailored assessments and interventions.
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