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LIBRE GO!: A Mobile Application for Longitudinal Social Participation Assessment and Resources Connection after Burn
Huan Deng1, Gregory L Frasco2, John T Morris3
1Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA, USA.
Summary
LIBRE GO! is a new mobile app that digitizes the Life Impact Burn Recovery Evaluation (LIBRE) Profile. This tool helps burn survivors track social participation and connect with resources, improving recovery outcomes.
Area of Science:
- Rehabilitation Medicine
- Digital Health
- Patient-Reported Outcomes
Background:
- Social participation is crucial for burn survivors' recovery but often hindered by challenges.
- Traditional paper-based assessments limit access to timely resources.
- The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a validated measure for social participation in burn survivors.
Purpose of the Study:
- To describe the design, development, and pilot testing of LIBRE GO!, a mobile application digitizing the LIBRE Profile.
- To assess the application's ability to measure social participation and connect survivors with resources.
- To evaluate the usability and feasibility of LIBRE GO! among burn survivors.
Main Methods:
- An iterative, user-centered design process involving survivors, clinicians, and researchers.
- Development of a mobile application with functions for surveys, score tracking, and resource connection.
- Pilot testing with eight burn survivors using acceptability, appropriateness, and feasibility measures, followed by focus groups.
Main Results:
- LIBRE GO! was pilot tested with high average scores for Acceptability (4.13/5), Appropriateness (4.28/5), and Feasibility (4.31/5).
- Participants found the app easy to use for tracking social engagement and accessing resources.
- The application successfully digitized the LIBRE Profile and connected users with community resources.
Conclusions:
- LIBRE GO! is an acceptable, appropriate, and feasible tool for assessing and supporting social participation in burn survivors.
- The mobile application empowers survivors and provides clinicians with a validated tool for evidence-based care.
- Widespread adoption of LIBRE GO! can enhance social reintegration and improve long-term recovery for individuals with burn injuries.
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