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Agreement Between Parental Reports of Part C Early Intervention Service Utilization and Part C Early Intervention
Michelle L Stransky1, Jocelyn Kuhn2, Emily Feinberg2,3
1Center for the Urban Child and Healthy Family, Boston Medical Center, 801 Albany St., Boston, MA 02119, USA.
Insights
Parent reports of early intervention (EI) services generally align with official records, though agreement varies by service type. This suggests parents can provide reliable information to help increase EI participation for young children.
Area of Science:
- Pediatrics
- Public Health
- Developmental Psychology
Background:
- Part C of the Individuals with Disabilities Education Act mandates early intervention (EI) services for eligible children under three.
- Despite established systems, EI enrollment is lower than anticipated.
- Accurate assessment of EI service utilization is crucial for improving access and participation.
Purpose of the Study:
- To evaluate the concordance between parental reports and state-based service records for Part C early intervention (EI) services.
- To understand the reliability of parent-reported EI utilization data.
Main Methods:
- 162 children from marginalized communities in Boston and New Haven, identified as high-risk for autism, participated.
- Parents reported their child's EI service receipt at four time points.
- Children's EI service records were obtained from state agencies for comparison.
Main Results:
- Overall agreement between parent reports and service records was 70%, with fair to moderate concordance.
- Service-specific agreement ranged from 46% to 81.6%, indicating variability.
- Agreement was higher for services delivered at home, with no significant differences based on sociodemographic factors.
Conclusions:
- Parental reports offer a generally reliable method for assessing early intervention (EI) service use, particularly for overall participation and specific therapies like physical and occupational therapy.
- Findings support the use of parent-elicited information by professionals to gauge EI service utilization.
- Strategies to enhance EI participation can be informed by understanding the nuances of parent-reported data.
Background:
Part C of the Individuals with Disabilities Education Act mandates that eligible children under age three receive free access to early intervention (EI) through state-based programs. Despite a robust "Child Find" system, enrollment remains lower than expected. Community and medical professionals often rely on parent report of service utilization to gauge whether children are receiving developmental services. Understanding the reliability of parent report of EI can guide strategies to increase EI participation.
Objective:
To assess the extent to which parental reports of Part C EI services agree with state-based service records.
Method:
We address this research objective among 162 children and their parents from marginalized communities in Boston, MA and New Haven, CT who were identified as having a higher likelihood of autism and participated in a randomized controlled trial to facilitate access to autism evaluation and treatment. Parents reported whether their child was currently receiving EI services at four time points and released their child's EI service records from state agencies.
Results:
Overall agreement between parent and service records was 70% and ranged from fair to moderate and service-specific agreement ranged from 46% to 81.6%. Sensitivity, specificity, and positive/negative predictive values ranged widely for both overall and service-specific EI use. We found no differences in agreement by sociodemographic characteristics, but agreement was higher when children received EI services at home.
Conclusions:
Our findings support community and medical professionals' elicitation of children's EI service use from parents, especially for participation in EI overall and for physical and occupational therapy.
Trial Registration Number:
Clinical Trials.gov Identifier: NCT02359084.
Date Of Trial Registration:
February 9, 2015.
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