Agreement Between Parental Reports of Part C Early Intervention Service Utilization and Part C Early Intervention

Michelle L Stransky1, Jocelyn Kuhn2, Emily Feinberg2,3

  • 1Center for the Urban Child and Healthy Family, Boston Medical Center, 801 Albany St., Boston, MA 02119, USA.

Insights

Parent reports of early intervention (EI) services generally align with official records, though agreement varies by service type. This suggests parents can provide reliable information to help increase EI participation for young children.

Area of Science:

  • Pediatrics
  • Public Health
  • Developmental Psychology

Background:

  • Part C of the Individuals with Disabilities Education Act mandates early intervention (EI) services for eligible children under three.
  • Despite established systems, EI enrollment is lower than anticipated.
  • Accurate assessment of EI service utilization is crucial for improving access and participation.

Purpose of the Study:

  • To evaluate the concordance between parental reports and state-based service records for Part C early intervention (EI) services.
  • To understand the reliability of parent-reported EI utilization data.

Main Methods:

  • 162 children from marginalized communities in Boston and New Haven, identified as high-risk for autism, participated.
  • Parents reported their child's EI service receipt at four time points.
  • Children's EI service records were obtained from state agencies for comparison.

Main Results:

  • Overall agreement between parent reports and service records was 70%, with fair to moderate concordance.
  • Service-specific agreement ranged from 46% to 81.6%, indicating variability.
  • Agreement was higher for services delivered at home, with no significant differences based on sociodemographic factors.

Conclusions:

  • Parental reports offer a generally reliable method for assessing early intervention (EI) service use, particularly for overall participation and specific therapies like physical and occupational therapy.
  • Findings support the use of parent-elicited information by professionals to gauge EI service utilization.
  • Strategies to enhance EI participation can be informed by understanding the nuances of parent-reported data.
Abstract

Related Concept Videos

Methods of Documentation V: CBE01:23

Methods of Documentation V: CBE

Charting by Exception, or CBE, is a method of documentation used in healthcare, particularly in nursing, that focuses on documenting only significant or abnormal findings rather than recording every detail. This approach aims to streamline the documentation process, improve efficiency, and ensure that healthcare providers can quickly identify deviations from normalcy in patient assessments.
In CBE, healthcare professionals establish predefined standards of practice that define what constitutes...
Methods of Documentation III: PIE01:21

Methods of Documentation III: PIE

Problem-intervention-evaluation (PIE) is a systematic approach to documentation used in healthcare settings for clinical decision-making and patient care planning. It is a structured approach to organizing patient data based on problems, interventions, and evaluations. Here's a breakdown of its key features and considerations:
Data Reporting and Recording01:24

Data Reporting and Recording

Reporting and recording are crucial in data documentation. The timely, thorough, and accurate documentation of facts is essential when recording patient data. Failure to record findings during an assessment or interpretation of a problem will result in loss of information and make the patient document unreliable. The reader is left with general impressions if the information is not specific. A recording is documenting data of the individual's health information in a traceable, secure, and...
Introduction to Documentation and Reporting01:20

Introduction to Documentation and Reporting

Documentation is the systematic process of formally recording, maintaining, and communicating information.
Nursing documentation records essential information and details regarding a patient's care and treatment in written or electronic form. It is a critical aspect of nursing practice that involves documenting assessments, interventions, outcomes, and other relevant details about a patient's health status.
Documentation maps the patient's health journey by creating a comprehensive and precise...
Purpose of Health Records I01:11

Purpose of Health Records I

The vital purpose of health records is to provide a complete and accurate account of a patient's medical history, including communication, diagnostic and therapeutic orders, care planning, research, and quality review.
Here's a breakdown of how health records serve these purposes:
Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities