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Integration of the Korean and World Databases for Pediatric and Congenital Heart Surgery: A Model for Global Registry
James D St Louis1, Brian P Bateson2, Taylor Broser3
1Department of Surgery, Augusta University, Augusta, GA, USA.
Insights
The Korean Pediatric and Congenital Heart Surgery Database (KPCHSD) was linked to the World Database for Pediatric and Congenital Heart Surgery (WDPCHS), enabling global data sharing for improved congenital heart defect care.
Area of Science:
- Cardiovascular Surgery
- Health Informatics
- Global Health
Background:
- Establishing the Korean Pediatric and Congenital Heart Surgery Database (KPCHSD) is crucial for a global network focused on pediatric and congenital heart surgery quality care.
- Worldwide outcomes data are essential for quality assurance and resource advocacy in pediatric cardiac care.
Purpose of the Study:
- To develop and implement the Korean Pediatric and Congenital Heart Surgery Database (KPCHSD).
- To harmonize KPCHSD variables with the World Database for Pediatric and Congenital Heart Surgery (WDPCHS).
- To establish a secure data transfer and reporting system between the KPCHSD and WDPCHS.
Main Methods:
- Collaboration between the Korean Society for Thoracic and Cardiovascular Surgery and the World Society for Pediatric and Congenital Heart Surgery (WSPCHS).
- Development of harmonized data variables tailored for Korean congenital heart surgery practice.
- Implementation of secure software for inter-database data transfer and outcomes reporting.
Main Results:
- Successful initial data upload of over 2,500 operations from KPCHSD to WDPCHS in 2023.
- Establishment of a secure, cloud-based dashboard for password-protected access to comparative data.
- Individual center data will be compared with national and international aggregates.
Conclusions:
- The WSPCHS and Korean collaborators have advanced a global network for knowledge sharing and quality improvement in congenital heart disease treatment.
- The platform allows countries to validate data while maintaining control, supporting quality assessment.
- Aggregated data aids in securing resources for all nations, irrespective of economic status.
Background:
Establishing the Korean Pediatric and Congenital Heart Surgery Database (KPCHSD) and linking it to the World Database for Pediatric and Congenital Heart Surgery (WDPCHS) is an important step toward creating a global network for quality care. Worldwide outcomes data are needed to support quality assurance and advocacy for necessary resources for pediatric and congenital cardiac care.
Methods:
The Korean Society for Thoracic and Cardiovascular Surgery collaborated with the World Society for Pediatric and Congenital Heart Surgery (WSPCHS) to develop and implement the KPCHSD. Variables selected for collection met the specific needs of Korean congenital heart surgery practice and were harmonized with the WDPCHS. Software was developed to link the databases in a secure environment, transfer data from KPCHSD to the WDPCHS, and produce outcomes reports.
Results:
The initial data upload from the KPCHSD to the WDPCHS was successfully completed in 2023. Over 2,500 operations from a 2-year period were transferred from the KPCHSD into the WDPCHS. Comparisons of individual center data will be made with both national and international aggregates. These comparisons will be available to individual centers via a password-protected cloud-based dashboard.
Conclusions:
Working in collaboration with our Korean colleagues, the WSPCHS has taken the next step toward developing a global network to share knowledge and expertise and to promote quality improvement in the treatment of congenital heart disease. Using this platform, countries perform data validation and completeness checks while maintaining control over their data. This aggregated data can support quality assessment and help secure the necessary resources for all countries, regardless of economic status.
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