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Disrupting power hierarchies: applying a trauma- informed, intersectional, reflexive engagement strategy
Cara L Brown1, Patricia Thille2, Rebecca Ganann3
1Department of Occupational Therapy, College of Rehabilitation Sciences, Rady Faculty of Health Sciences, University of Manitoba, P304 - 770 Bannatyne Avenue, Winnipeg, MB, R3E 0W2, Canada. Cara.Brown@umanitoba.ca.
Engaging lived experience researchers (LERs) in health research requires trauma-informed approaches to mitigate harm and disrupt power hierarchies. This study highlights successful strategies for meaningful LER involvement and improved research relevance.
Area of Science:
- Health Services Research
- Patient and Caregiver Engagement
- Qualitative Research Methods
Background:
- Patients and caregivers as lived experience researchers (LERs) are crucial for research relevance and impact.
- Poor engagement can lead to harm, including tokenization and re-traumatization for LERs.
- Existing power structures in research and healthcare systems can marginalize LERs' contributions.
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