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Bereavement Care after the Unexpected Death of a Child in a Pediatric Intensive Care Unit: A Systematic Integrative
Arielle Jolly1,2, Kylie Davies1, Ashleigh E Butler3
1School of Nursing, Curtin University, Bentley, Western Australia, Australia.
Insights
Families experiencing a child's unexpected death in a pediatric intensive care unit (PICU) need strong connections and communication with clinicians. Evidence-based bereavement care and ongoing support are crucial for improving grief outcomes.
Area of Science:
- Pediatric Intensive Care
- Bereavement Care
- Family Support
Background:
- Unexpected child death in a pediatric intensive care unit (PICU) can lead to profound and lasting psychosocial impacts on families.
- Effective, evidence-based bereavement care is essential for mitigating these impacts and improving grief outcomes.
- Understanding the specific needs of unexpectedly bereaved families is critical for tailoring care within PICUs.
Purpose of the Study:
- To identify the bereavement care needs of families who have experienced the unexpected death of a child in a PICU.
- To explore existing approaches for addressing the needs of these families.
Main Methods:
- An integrative review systematically searched major databases (OVID Medline, PsycINFO, CINAHL, SCOPUS, ProQuest) and Google Scholar for relevant research and guidelines.
- Articles were critically appraised using established checklists (CASP, MMAS, AGREE II).
- Data synthesis employed the constant comparison method for qualitative and quantitative findings.
Main Results:
- The review included 29 research articles and 5 guidelines, with 3 articles focusing specifically on unexpected child death.
- Four key themes emerged: connection and communication with PICU clinicians, awareness of the impacts of unexpected death, and emotional/physical support for family members.
- Families require strong relationships with clinicians and comprehensive support before, during, and after their child's death.
Conclusions:
- Unexpectedly bereaved families need sustained relationships with clinicians and compassionate support, including post-PICU follow-up.
- Further research is necessary to fully understand the unique needs of this population.
- Developing innovative, evidence-based interventions is crucial for enhancing bereavement outcomes for families.
Background:
When a child dies in a pediatric intensive care unit (PICU) from a sudden or unexpected cause such as trauma or sepsis, intense grief felt by the child's family can cause sustained psychosocial impacts. Supporting unexpectedly bereaved families with evidence-based bereavement care is key to improving grief outcomes, and understanding their specific needs is essential to inform the delivery of bereavement care in PICUs.
Aim:
To understand what is known about (1) bereavement care needs of families who have experienced the unexpected death of a child in a PICU, and (2) approaches to address families' needs.
Methods:
An integrative review was systematically conducted with the protocol registered a priori on the Open Science Framework. Original peer-reviewed research articles relating to relatives of children who died an unexpected death in a PICU were included from OVID Medline, PsycINFO, CINAHL, SCOPUS, and ProQuest, along with guidelines from Google© searching. Articles were critically appraised using Critical Appraisal Skill Program, Mixed Methods Appraisal Tool, and Appraisal of Guidelines, Research and Evaluation II checklists, and data were synthesized using the constant comparison method.
Results:
Twenty-nine original research articles (15 qualitative, 11 quantitative, 1 mixed method, and 2 secondary analyses) and five guidelines were included in this review. Three original articles focused on unexpected child death exclusively. From the findings of all 34 articles, four linked themes were identified: (1) connection and (2) communication with PICU clinicians, (3) awareness of the impacts of unexpected death, and (4) emotional and physical support for family members.
Conclusion:
Unexpectedly bereaved family members' needs included close relationships with clinicians and caring support before and after their child's death, including ongoing follow-up from the PICU. Further targeted research is needed to better understand the specific needs of unexpectedly bereaved families, gain diverse and representative evidence in this area, and develop innovative, evidence-based interventions to improve bereavement outcomes for the whole family.
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