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Neurodiversity and Intellectual Disability: Opportunities and Challenges for Functioning and Participation Across the

Rudaina Banihani1, Michael E Msall2

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Summary

This study advocates for understanding intellectual developmental disabilities through strengths and participation, using the F-Words framework. This approach shifts focus from prediction to enablement, improving quality of life for children and families.

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Area of Science:

  • Pediatric developmental disabilities
  • Rehabilitation and participation science

Background:

  • Intellectual developmental disabilities are increasingly understood through strengths and participation, not deficits.
  • The World Health Organization's International Classification of Functioning, Disability and Health (ICF) provides a framework for this understanding.
  • Existing approaches often focus on deficits and predictions, leading to uncertainty and stigma.

Purpose of the Study:

  • To introduce the "F-Words" framework (Function, Family, Fitness, Fun, Friends, Future) as a translation of the ICF for clinical and family use.
  • To demonstrate how early counseling and interdisciplinary support can shift care towards enablement and participation.
  • To propose principles for enablement counseling and collaboration to enhance quality of life.

Main Methods:

  • Review of three common pediatric scenarios: Down syndrome, fetal alcohol spectrum disorder, and prematurity.
  • Application of the "F-Words" framework to these scenarios.
  • Discussion of early counseling and interdisciplinary support strategies.

Main Results:

  • A function- and participation-focused approach supports clinically useful goal setting.
  • This approach reduces diagnostic overshadowing and stigma.
  • It improves alignment with family priorities and promotes belonging.

Conclusions:

  • Early enablement counseling and interdisciplinary collaboration are crucial for children with developmental delays.
  • Shifting from deficit-based to participation-focused care enhances quality of life across the life course.
  • The "F-Words" framework offers practical principles for this shift in health, education, and community systems.