The Views of Autistic Adults on Early Autism Interventions: A Mixed-Methods Systematic Literature Review

Area of Science:

• Neurodevelopmental Disorders
• Developmental Psychology
• Autism Spectrum Disorder Research

Background:

• Historically, early autism interventions were developed without autistic input.
• Understanding autistic adults' perspectives is crucial for effective intervention design.

Purpose of the Study:

• To review and synthesize the views and experiences of autistic adults on early psychosocial/educational interventions for young autistic children.
• To identify key themes and priorities for autism intervention from the perspective of autistic individuals.

Main Methods:

• Systematic review of 19 studies identified across four databases (Web of Science, ERIC, Education Database, PsycINFO).
• Qualitative data analyzed using thematic synthesis; quantitative data analyzed using descriptive narrative synthesis.
• Quality appraisal conducted using the Quality Assessment with Diverse Studies tool.

Main Results:

• Five qualitative themes emerged: 'Hear the child's voice,' 'Let the child be a child,' 'Celebrate autistic lives,' 'Understand autistic challenges,' and 'Damage done' (negative experiences).
• Quantitative data indicated autistic adults prioritized well-being, support, and accessibility, and opposed goals focused on reducing autistic traits (e.g., stimming, eye contact).

Conclusions:

• Early interventions should adopt an autism-affirmative approach, fostering self-determination and development.
• Interventions must be developmentally appropriate and incorporate the autistic child's perspective.
• Further research is needed to explore how diverse autistic populations influence intervention priorities.