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Quality and Readability of Websites on Tongue Base Procedures for Pediatric Obstructive Sleep Apnea
Nathan G Rasmussen1, Jeffrey C Mecham2, Patrick Scheffler3
1Mayo Clinic Alix School of Medicine, Mayo Clinic Scottsdale Arizona USA.
Insights
Online information on pediatric tongue base procedures for sleep apnea is of fair quality and too difficult to read. Most websites are for professionals, not patients, highlighting a need for better patient resources.
Area of Science:
- Otolaryngology
- Sleep Medicine
- Health Informatics
Background:
- Tongue base obstruction causes persistent sleep apnea in pediatric patients post-adenotonsillectomy.
- The internet is a primary source for patient health information.
- Assessing online resources for pediatric tongue base procedures is crucial.
Purpose of the Study:
- To evaluate the quality and readability of patient-directed websites on tongue base procedures for pediatric obstructive sleep apnea.
- To determine the proportion of online information that specifically addresses pediatric cases.
Main Methods:
- Searched Google for terms related to tongue base procedures.
- Included up to 10 relevant sites per query.
- Assessed website quality using the DISCERN tool and readability with Flesch Reading Ease Score (FRES) and Flesch-Kincaid Grade Level (FKGL).
- Analyzed sites for mention of pediatric patients.
Main Results:
- Analyzed 35 unique websites; mean DISCERN score was 44.7 (fair quality).
- Mean FRES was 46.3 and FKGL was 11.5, indicating college and 12th-grade reading levels.
- Only 8/35 sites (23%) mentioned pediatrics, despite the procedures' relevance.
Conclusions:
- Patient-facing websites on tongue base procedures offer fair quality information at excessively high reading levels.
- Most available online information is geared towards medical professionals, not patients.
- There is a significant need for accessible, high-quality online resources for patients regarding pediatric tongue base procedures.
Objectives:
Tongue base obstruction is a cause of persistent sleep apnea after adenotonsillectomy in pediatric patients. The internet is the most used tool by patients for gathering healthcare information. This study aims to assess the quality and readability of websites directed to patients regarding tongue base procedures for pediatric obstructive sleep apnea.
Methods:
Queries for the terms "lingual tonsillectomy," "posterior midline glossectomy," "tongue reduction," "tongue base suspension," and "hypoglossal nerve stimulator" were entered into Google on September 11, 2023. Thirty sites were pulled for each, and up to 10 sites per query meeting inclusion criteria were included for analysis. The DISCERN tool was used to evaluate quality. Flesch Reading Ease Score (FRES) and Flesch-Kincaid Grade Level (FKGL) were used to measure readability. Sites were analyzed for mention of pediatrics.
Results:
Thirty-five unique sites were analyzed. The mean DISCERN score was 44.7 (range 28.5-64.0) or "fair." The mean FRES was 46.3 (range 9.6-66.6) and FKGL 11.5 (range 7.4-19.2), indicating college and 12th-grade reading levels. Only 8/35 sites mentioned pediatrics. The average number per query of relevant sites directed towards patients on the first search engine page was 3.6. Despite tongue base procedures being relevant to pediatrics, only one in five sites mentioned children.
Conclusion:
Websites directed at patients regarding tongue base procedures are of "fair" quality and at readability grade levels far above what is recommended. The majority of sites available for tongue base procedures are geared to professionals rather than patients. This study demonstrates a need for high-quality information for patients about these procedures.
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