TRANSformative perspectives on endometriosis research policy, and practice: Insights from multidisciplinary focus...

Area of Science:

• Endocrinology and Reproductive Health
• Gender Studies
• Health Policy

Background:

• Transgender and gender diverse (TGD) individuals experience unique health challenges, particularly with conditions like endometriosis.
• Current healthcare systems, research, and policies are often based on a cisheteronormative model, failing to meet the needs of the TGD community.
• The health needs of TGD people with endometriosis remain largely unaddressed in existing literature and practice.

Purpose of the Study:

• To establish a future research agenda for endometriosis and gender diversity.
• To formulate policy and practice recommendations for improving TGD healthcare.
• To address the specific health needs of TGD individuals with endometriosis.

Main Methods:

• Focus group methodology involving twenty diverse community members and professionals.
• A two-day event at the Brocher Foundation facilitated plenary presentations and subgroup discussions.
• Content analysis of gathered data to identify key themes in research, policy, and practice.

Main Results:

• Identified three primary categories: research, policy, and practice.
• Highlighted the need for transdisciplinary and community-based research centering TGD experiences.
• Emphasized the necessity of investigating gender-affirming care's impact on endometriosis and treatment adequacy for TGD individuals.

Conclusions:

• Future research must adopt inclusive, community-centered methodologies to address TGD health needs.
• Healthcare provider education is essential for improving clinical practice and patient outcomes.
• A paradigm shift in health policy is required to move beyond cisheteronormativity and ensure equitable care for TGD individuals with endometriosis.