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Preferred Language, Patient-Provider Interactions and Standardized Outcome Assessment in Patients with Pediatric
Ahmad Bakhsh1,2, Aditi Deokar2, Gabrielle Alonzi2
1Department of Pediatrics, Faculty of Medicine, University of Jeddah, Jeddah, Saudi Arabia.
Arthritis Care & Research
|August 6, 2026
Summary
Families preferring languages other than English (LPOE) initiated fewer communications with healthcare teams for juvenile idiopathic arthritis (JIA) and systemic lupus erythematosus (SLE). This disparity was more pronounced during the COVID-19 pandemic, highlighting potential inequities in care.
Area of Science:
- Pediatric Rheumatology
- Health Communication
- Health Equity
Background:
- Effective communication is crucial for families managing juvenile idiopathic arthritis (JIA) and systemic lupus erythematosus (SLE).
- Language preference other than English (LPOE) may impact patient-provider interactions and health outcomes.
Purpose of the Study:
- To examine the association between LPOE and patient-provider communication frequency in JIA/SLE patients.
- To assess the impact of LPOE on standardized outcome assessments.
- To identify potential drivers of health disparities related to language preference.
Main Methods:
- Retrospective cohort study of JIA/SLE patients (2016-2024) at a tertiary care center.
- Matched LPOE patients (n=60) 1:2 with English language preference (ELP) counterparts.
- Used multivariable regression to compare communication rates, adjusting for disease severity, COVID-19 pandemic, insurance, and Child Opportunity Index (COI).
Main Results:
- LPOE families initiated significantly fewer communications (aIRR 0.51; 95% CI: 0.31-0.84).
- LPOE families initiated 0.18-fold fewer communications during the COVID-19 pandemic (p<0.001).
- No significant difference in provider-initiated communication; Physician VAS completion was marginally lower for LPOE families (aOR 0.58; 95% CI: 0.32-1.03).
Conclusions:
- Reduced communication frequency by LPOE families may contribute to language-related health disparities, especially during system stress.
- Enhanced outreach is needed for families facing healthcare engagement barriers.
- Addressing communication barriers can promote more equitable care delivery for JIA/SLE patients.
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