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Loss of a sibling with profound intellectual and multiple disabilities: young adults' perspectives
1Institute of Sociology, Faculty of Economics and Sociology, University of Łódź, Lodz, Poland.
Background:
The aim of this study was to analyse the experiences of bereaved young adults 2-9 years after the loss of a sibling with profound intellectual and multiple disabilities.
Method:
The research material comprised information obtained from typically developing siblings (aged 18-29 years) of persons with profound intellectual and multiple disabilities. Data were analysed using grounded theory with open and axial coding.
Results:
Four main areas were identified, reflecting the key issues explored during the interviews. These included the following: "Lived emotions," "Quality of life," "Relationships with parents," "Reconceptualisation of identity."
Conclusion:
The research has shown that the death of a sibling with profound intellectual disabilities has significant and long-lasting implications for the brother/sister's entire life. The results of this study, combined with existing literature, provide a basis for understanding the experiences of siblings after the loss of a brother or sister with intellectual disabilities.
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