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Psychological Burden Among Informal Caregivers of Cirrhosis and Liver Transplant Patients: A Cross-Sectional Study
Raquel Sanches Slusarski Martins1, Luiz Augusto Carneiro D'Albuquerque1, Gilton Marques Fonseca1
1Departamento de Gastroenterologia, Hospital das Clínicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, Brazil.
Objectives:
To compare the burden and stress levels of two groups of informal caregivers: those assisting patients undergoing treatment for cirrhosis (Group 1) and those caring for liver transplant recipients (Group 2).
Methods:
This cross-sectional study included 223 informal caregivers of cirrhosis and liver transplant patients monitored at the Liver Transplant Unit. Participants completed a sociodemographic questionnaire, a patient disease history form, and the Burden Scale for Family Caregivers (BSFC).
Results:
Caregiver burden was influenced by specific factors: being younger than 40 years, having children, caring for emotionally distressed patients, and lower per capita income and women were the most burdened.
Conclusions:
These findings highlight the need for public health strategies that recognize and support the essential, yet often invisible, role of informal caregivers. A more equitable redistribution of caregiving responsibilities between families, Society, and the State is critical to reducing caregiver strain and improving outcomes for both caregivers and patients.
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