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Published on: March 8, 2018
Development and preliminary psychometric evaluation of a patient-reported trauma-informed care measure: The novel
Marlise Jeanne Pierre-Wright1, Revika Singh2, Ibrahim Badreldin Mokhtar2
1Northwestern University, Feinberg School of Medicine, Department of Medicine (Division of General Internal Medicine), 750 N. Lake Shore Dr., 10th floor, Chicago, IL, 60611, USA.
Purpose:
Trauma-informed care is an important clinical approach given the high prevalence of trauma and adverse childhood experiences in the general population. However, there is currently no validated patient-reported measure assessing patients' perceptions of trauma-informed care delivery by physicians.
Objective:
We aimed to develop and conduct a preliminary psychometric evaluation of the Patient Perspectives on Trauma-Informed Care Scale (PP-TIC). We also sought to characterize patient perspectives on trauma-informed care to inform future refinement of the scale.
Methods:
We developed the PP-TIC based on literature review, the Substance Abuse and Mental Health Services Administration (SAMHSA) six trauma-informed care principles, and the Be Trauma I.N.F.O.R.M.E.D.
Framework:
We surveyed 90 (53% response rate) hospitalized adult patients using the PP-TIC, a 10-item Adverse Childhood Experiences (ACEs) questionnaire, and the Trust in Physician Scale (TPS). We conducted in-depth interviews with a diverse subset of participants (10%) and analyzed transcripts using thematic analysis.
Key Findings:
Across all 20 items, Cronbach's alpha was 0.90 and corrected item-total correlations ranged from 0.30 to 0.75. We removed three reverse-scored items; this resulted in the Cronbach's alpha increasing to 0.91 and the lowest corrected item-total correlation increased to 0.36. PP-TIC scores demonstrated strong convergent validity with the TPS (r = 0.64, p < 0.01), while also suggesting the PP-TIC captures distinct relational and experiential dimensions of care. PP-TIC scores were not associated with ACE scores (r = 0.004, p = 0.97). Qualitative analysis identified five major themes related to trauma-informed care, including (1) listening; (2) transparency; (3) recognizing the impact of prior health care experiences; (4) care coordination; and (5) attentiveness.
Conclusion:
The PP-TIC demonstrates promising preliminary evidence supporting reliability and validity as a patient-reported measure of trauma-informed care. Larger studies are needed to further evaluate dimensionality, response category functioning, and psychometric performance across healthcare settings and populations.
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