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Who Diagnoses Irreversible Dying? The Irreversible Dying Transition and Medical Responsibility Before Death
1Medical Practitioner, Independent Scholar, Tokyo, Japan. mmatsui@dd.iij4u.or.jp.
Abstract:
Medicine assigns clear professional responsibility for determining and certifying death, but responsibility for determining when irreversible dying has begun is often less clearly assigned. This paper proposes the irreversible dying transition (IDT) as the point at which no medically reasonable intervention can restore a sustainable life-preserving clinical state. IDT is distinct from prognosis, terminal illness, actively dying, the futility of a particular intervention, and decisions to limit treatment. Its purpose is not to introduce another diagnostic label, but to make explicit a specific medical judgment about reversibility that may otherwise remain implicit. The framework distinguishes a life-preservable clinical state, IDT, the irreversible dying process, and death. It argues that when irreversible dying is reasonably in question, a clearly designated physician should assess whether IDT is established, not established, or indeterminate, while drawing on multidisciplinary information and remaining open to reassessment. Shared decision-making cannot substitute for this assessment because patients and families may choose among medically available options but should not be required to determine which options remain restorative. Long-term care settings in Japan provide one practical illustration of this distinction. When physicians are unavailable or involved mainly at the point of death, nurses, care workers, and families may make consequential decisions about transfer, treatment, and continued facility care without a prior medical determination of reversibility. IDT makes clear where responsibility for this judgment lies. Safeguards are required against premature diagnosis, self-fulfilling prophecy, age and disability bias, nominal compliance, and conflation with treatment withdrawal. The concept therefore clarifies a limited but important responsibility: medicine should explicitly address whether irreversible dying has begun, rather than leaving this responsibility to become apparent only after death.