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Huntington's chorea. Its impact on the spouse
The Journal of Nervous and Mental Disease
|April 1, 1980
Summary
Spouses of Huntington's chorea patients experience significant emotional distress and life disruption. The diagnosis profoundly impacts wives' lifestyles, family roles, and marital relationships, causing continuous trauma.
Area of Science:
- Neurology
- Psychology
- Sociology
Background:
- Huntington's chorea is a progressive, heritable neurodegenerative disorder.
- The genetic nature of Huntington's chorea necessitates understanding its impact on families.
Observation:
- Interviews with 15 wives of Huntington's chorea patients were conducted.
- Wives were unaware of the family history of heritable disease prior to marriage.
Findings:
- Wives initially reacted with disbelief and denial upon diagnosis.
- Progressive disease awareness and transmission fears led to resentment and hostility.
- The disease significantly altered wives' lifestyles, responsibilities, goals, and marital dynamics.
Implications:
- The study highlights the profound, often traumatic, impact of Huntington's chorea on spousal caregivers.
- Healthcare providers should address the psychosocial needs of spouses affected by Huntington's chorea.
- Genetic counseling and support are crucial for families facing Huntington's chorea.