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The pilot Stroke Data Bank: definition, design, and data.

S C Kunitz, C R Gross, A Heyman

    Stroke
    |July 1, 1984
    PubMed
    Summary
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    This study established the pilot Stroke Data Bank, collecting prospective data on 1158 acute cerebrovascular disease patients. The bank standardized data collection for future stroke research and prognosis.

    Area of Science:

    • Neurology
    • Epidemiology
    • Medical Informatics

    Background:

    • Acute cerebrovascular disease poses a significant health burden.
    • Previous stroke research lacked standardized, prospective data collection.
    • The National Institute of Neurological and Communicative Disorders and Stroke (NINCDS) initiated a pilot project to address these gaps.

    Purpose of the Study:

    • To describe the establishment and methodology of the pilot Stroke Data Bank.
    • To present the initial distribution of cerebrovascular disease cases by diagnostic and demographic categories.
    • To lay the foundation for a main phase of the Stroke Data Bank for further stroke research.

    Main Methods:

    • Collaboration between four university centers.
    • Development and implementation of standardized data collection forms.

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  • Prospective data gathering on clinical course, laboratory findings, therapy, and outcomes for 1158 patients.
  • Systematic case allocation to stroke sub-types using operational definitions based on clinical and laboratory data (CT, angiography).

    • Main Results:

    • Successfully established the pilot Stroke Data Bank with 1158 patients.
    • Developed standardized data collection protocols.
    • Demonstrated high utilization of advanced imaging: 90% CT and 42% angiography.
    • Provided initial demographic and diagnostic case distributions.

    Conclusions:

    • The pilot Stroke Data Bank successfully standardized prospective data collection for cerebrovascular disease.
    • The project provided a robust dataset for studying stroke classification, evolution, diagnosis, and prognosis.
    • The established methods and infrastructure paved the way for the main phase of the Stroke Data Bank.