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Insurance and genetic testing: where are we now?
H Ostrer1, W Allen, L A Crandall
1Department of Pediatrics, New York University Medical Center, New York 10016.
American Journal of Human Genetics
|March 1, 1993
Summary
Genetic testing can predict future health risks, raising concerns about insurance discrimination. This review examines genetic information
Area of Science:
- Genetics and Public Health
- Bioethics
- Insurance Law
Background:
- Advancements in basic research are enabling genetic tests for presymptomatic disease prediction.
- Concerns exist regarding the misuse of genetic information, including privacy breaches, eugenics, and discrimination.
- Current legal and administrative frameworks may inadequately protect genetic information.
Purpose of the Study:
- To review insurance systems (life, health, disability) and their principles.
- To examine risk classification, market dynamics, and regulatory aspects within the insurance industry.
- To assess the potential impact of genetic information on the insurance sector.
Main Methods:
- Review of existing literature on insurance principles and regulation.
- Analysis of potential implications of genetic testing on insurance underwriting.
- Examination of ethical, legal, and social issues related to genetic information.
Main Results:
- Genetic testing poses challenges to traditional insurance risk classification.
- Potential for genetic discrimination in insurance markets necessitates policy review.
- Existing regulations may not sufficiently address the complexities of genetic information.
Conclusions:
- Sound social policy is needed to guide the fair use of genetic information in insurance.
- The insurance industry must adapt to the implications of genetic testing.
- Further study is required to develop robust legal and ethical safeguards.