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Diabetes: an adolescent's perspective

H Kyngäs1, J Barlow

  • 1Department of Nursing, University of Oulu, Finland.

Journal of Advanced Nursing
|November 1, 1995
PubMed
Summary
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Adolescents with insulin dependent diabetes mellitus (IDDM) perceive it as a controlling force impacting their lives. While often seen as a threat, some view IDDM as an opportunity for a healthy lifestyle.

Area of Science:

  • Pediatric Endocrinology
  • Adolescent Psychology

Background:

  • Insulin dependent diabetes mellitus (IDDM) significantly impacts adolescent well-being.
  • Understanding the subjective experiences of adolescents with IDDM is crucial for supportive care.

Purpose of the Study:

  • To explore the personal meaning and perceived impact of IDDM in Finnish adolescents.
  • To identify themes related to control, life equilibrium, and lifestyle choices.

Main Methods:

  • Exploratory study involving 51 Finnish adolescents (13-17 years old).
  • Qualitative data collection through interviews.
  • Continuous comparative analysis of interview data.

Main Results:

  • IDDM was personally described using terms like 'nightmare,' 'prison,' and 'hell,' highlighting a core concept of 'control.'

Related Experiment Videos

  • Adolescents felt IDDM limited their freedom and independence.
  • Two main impact themes emerged: a threat to life's equilibrium and an opportunity for a healthy lifestyle.

    • Conclusions:

    • IDDM is perceived by adolescents as a significant life disruptor, affecting physical, psychological, and social well-being.
    • The concept of control is central to the adolescent experience with IDDM.
    • Awareness of these subjective experiences is vital for improving care and support for adolescents with IDDM.