[Psychosocial problems in Huntington chorea. 1: Overview, project description. social and illness-related data]

Huntington's Disease, a neuropsychiatric disorder with dominant inheritance and late manifestation is related to multiple psychosocial problems of the affected person, his life partner as well as their children (so-called individuals at risk). During a five years project the authors contacted 131 persons, directly and indirectly involved in problems with H.D. In the first part the authors present after a general survey sociodemographic and clinical data of the project.