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[Living with diabetes: an ethnographic study]

L A Gonzalez

    Revista Da Escola De Enfermagem Da U S P
    |April 1, 1995
    PubMed
    Summary

    Diabetic patients perceive their disease as a permanent, dangerous illness, evoking feelings of sadness and fear. This ethnographic study reveals their lived experiences in outpatient endocrinology care.

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    Area of Science:

    • Medical Anthropology
    • Nursing Research
    • Sociology of Health

    Context:

    • Focuses on the lived experiences of diabetic patients within an outpatient endocrinology service at a school hospital.
    • Explores the health-disease phenomenon from the patient's perspective.

    Purpose:

    • To gain a comprehensive understanding of diabetic clients' thoughts, practices, and feelings during treatment.
    • To investigate the subjective experience of living with diabetes in a clinical setting.

    Summary:

    • Employs Spadley's ethnographic methodology, including participant observation and interviews, guided by symbolic interactionism.
    • Identified the central theme: "The disease came to stay," with diabetes metaphorically represented as dangerous and destructive.
    • Reveals that the disease is experienced as an illness provoking profound emotions such as sadness, panic, pain, and fear of death.

    Impact:

    • Provides crucial emic (insider) knowledge to nursing practice.
    • Establishes significant epistemological and ontological foundations for nursing care of diabetic patients.

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