Brain tumor support group: content themes and mechanisms of support

To describe the experiences and needs of patients with brain tumors as evidenced in analysis of themes from support group discussions and to increase knowledge of supportive mechanisms operant in support groups for medically vulnerable populations.

Descriptive, exploratory.

An urban medical center on the U.S. West Coast.

Participants in a brain tumor support group, including patients, families, friends, and facilitators.

Researchers analyzed observational field notes and videotapes of a brain tumor support group's meetings over a six-month period using grounded theory methods to develop inclusive conceptual categories of themes and to document mechanisms of support.

Five thematic categories emerged: telling the story, managing medical advice, seeking and exchanging information, the long haul, and family life changes. Two major categories of supportive mechanisms emerged: finding a safe haven and maintaining morale, each of which contained several contributing dimensions.

Discussion topics, dialogue, and interaction among participants during the support group meetings.

The support group provided a specific therapeutic forum for patients with brain tumors and their families, especially regarding the difficulties of survival and maintaining quality of life after initial treatment.

Findings generated knowledge that can guide patient care, particularly follow-up care after initial treatment. Support group facilitation by expert nurse clinicians can provide health-care guidance and emotional support to medically vulnerable patients and their families through symptom assessment and management, timely referral, therapeutic group process, promotion of self-care, and adaptive coping.