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Family perspectives on problem behavior

A P Turnbull1, M Ruef

  • 1Beach Center on Families and Disability, University of Kansas, Lawrence 66045, USA.

Mental Retardation
|October 1, 1996
PubMed
Summary
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Families facing challenges with members exhibiting problem behavior seek practical information and support. Their insights can guide research and training for better interventions and family well-being.

Area of Science:

  • Intellectual Disability and Behavioral Science
  • Family Support Services Research

Background:

  • Individuals with intellectual disability may exhibit problem behaviors, posing significant challenges for families.
  • Existing support systems may not fully address the complex needs of families caring for members with problem behaviors.

Purpose of the Study:

  • To explore families' perspectives on problem behavior in members with intellectual disability.
  • To identify current challenges faced by these families.
  • To gather family-driven recommendations for support, information, and interventions.

Main Methods:

  • Qualitative data collection through interviews with 17 families.
  • Focus on family definitions of problem behavior, experienced challenges, and successful coping strategies.

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  • Exploration of families' perceived needs for information and resources.

    • Main Results:

    • Families define problem behavior based on its impact on the individual and others.
    • Key challenges include managing behavior, accessing services, and social stigma.
    • Successful approaches often involve consistent strategies, professional support, and strong family networks.
    • Families expressed a need for practical, accessible information and tailored support.

    Conclusions:

    • Family perspectives are crucial for developing effective interventions for problem behavior in intellectual disability.
    • Recommendations highlight the need for improved research, demonstration projects, and training programs.
    • Enhanced support systems should incorporate family-identified needs and successful strategies.