Dissonant Loss: the experiences of donor relatives

Area of Science:

• Transplantation Science
• Psychology
• Sociology

Background:

• Organ donation is a critical medical procedure.
• Understanding the experiences of donor families is essential for improving support systems.

Purpose of the Study:

• To explore the in-depth experiences of organ donor relatives.
• To understand their emotional reactions, decision-making perceptions, and the challenges and benefits of donation.
• To identify the needs of donor families.

Main Methods:

• Conducted narrative type interviews with 24 relatives of organ donors.
• Recruited participants from three Regional transplant co-ordinating centres in England.
• Analyzed transcribed interviews using a grounded theory approach and the constant comparative method.

Main Results:

• Donor relatives' experiences involve a process of conflict and resolution.
• Identified key themes related to emotional reactions, decision-making, problems, and benefits.
• Developed the theory of "Dissonant Loss" to explain donor relatives' experiences.

Conclusions:

• The theory of "Dissonant Loss" provides a framework for understanding the complex journey of organ donor families.
• Highlights the interplay of conflicting emotions and the process of finding resolution.
• Informs the development of better support strategies for grieving families.