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The association between objective and subjective caregiver burden

S L Jones1

  • 1School of Nursing, Kent State University, OH, USA.

Archives of Psychiatric Nursing
|April 1, 1996
PubMed
Summary

Caregivers of individuals with chronic mental illness face significant burdens. Client non-cooperation, not task volume, primarily increases caregiver distress and subjective burden.

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Area of Science:

  • Psychiatry
  • Caregiver Studies
  • Mental Health Research

Background:

  • Deinstitutionalization in the 1960s created significant caregiver burdens.
  • Caregivers of individuals with chronic mental illness experience both objective and subjective challenges.

Purpose of the Study:

  • To investigate the complex association between objective and subjective caregiver burdens.
  • To identify factors contributing to caregiver distress in chronic mental illness care.

Main Methods:

  • Longitudinal, quasi-experimental study over 3 years (1991-1994).
  • Data collected via telephone interviews, including quantitative and qualitative measures.
  • Examined the relationship between tasks required (objective burden) and caregiver's perception (subjective burden).

Main Results:

  • Caregivers generally accepted the tasks involved in care (objective burden).
  • Increased subjective burden was linked to client's uncooperative behavior, not the number of tasks.
  • Caregiver-client conflict, excessive demands, and embarrassment significantly elevated subjective burden.

Conclusions:

  • Subjective caregiver burden is significantly influenced by client-related factors, particularly uncooperative behavior and resulting conflicts.
  • Interventions should address caregiver-client interactions and conflict management to alleviate subjective burdens.
  • Understanding the nuances of caregiver burden is crucial for supporting families of individuals with chronic mental illness.

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