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A database for a National Haemophilia Centre
1Haematology Department, St James's Hospital, Dublin, Ireland.
Clinical and Laboratory Haematology
|September 1, 1996
Summary
A new database system enhances data management for hemophilia (a bleeding disorder) patients. This adaptable system supports diagnosis, treatment, and laboratory data analysis, improving patient care.
Area of Science:
- Medical Informatics
- Hematology
Background:
- Managing hemophilia requires comprehensive patient data.
- Existing systems may lack adaptability and advanced analytical capabilities.
Purpose of the Study:
- To describe a novel database system for hemophilia management.
- To ensure adaptability and standardization for future development.
- To facilitate incremental development of analytical and query methods.
Main Methods:
- Development of a database system for registration, diagnosis, treatment, and laboratory data.
- System designed for adaptability and standardization.
- Implementation on IBM-compatible PCs.
Main Results:
- The system is operational at the National Hemophilia Centre, Dublin.
- Over 100,000 records for 700 patients are managed.
- Significant improvements in data management and analysis have been achieved.
Conclusions:
- The developed database system significantly contributes to effective data management and analysis in hemophilia care.
- The system's design supports ongoing development of analytical tools.
- Successful implementation demonstrates the utility of specialized database solutions in managing rare bleeding disorders.