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Sickle cell disease: care throughout the life span
1School of Nursing, University of North Carolina, Chapel Hill, USA.
Journal of National Black Nurses' Association : JNBNA
|April 1, 1996
Summary
Families adapting to sickle cell disease (SCD) require lifestyle changes to support patients. This guide offers nurses tables to help families navigate SCD
Area of Science:
- Hematology
- Family Medicine
- Nursing Care
Background:
- Sickle cell disease (SCD) presents unique challenges for patients and their families.
- Effective family adaptation is crucial for patient well-being and maintaining family unit stability.
- Nurses play a vital role in supporting families through the complexities of SCD.
Purpose of the Study:
- To provide nurses with practical tools to guide families in adapting to SCD.
- To enhance family understanding of SCD demands and available resources.
- To illustrate the lived experiences of individuals with SCD and their families.
Main Methods:
- Information presented in tabular format for clarity and ease of use.
- Tables designed to integrate various aspects of SCD care and family support.
- Inclusion of case examples to provide real-world context.
Main Results:
- Tables offer a structured approach for nurses to support SCD patient families.
- Identifies key care providers and resources beneficial at different developmental stages.
- Provides insights into the daily lives and challenges faced by SCD families.
Conclusions:
- Nurses can effectively utilize structured information to empower families in managing SCD.
- Facilitating family adaptation is key to optimizing health resource utilization for SCD patients.
- Understanding family dynamics is essential for comprehensive SCD care.