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Home parenteral nutrition (HPN) in children in Sweden
G Carlsson1, A Håkansson, A Rubensson
1Department of Pediatric Surgery, Ostra, sjukhuset, Göteborg, Sweden.
Insights
Children on home parenteral nutrition (HPN) in Sweden showed normal growth and school attendance. Families adapted well to HPN, indicating successful long-term management for pediatric intestinal failure patients.
Area of Science:
- Pediatric Gastroenterology
- Clinical Nutrition
- Child Health Outcomes
Background:
- Home parenteral nutrition (HPN) is a critical intervention for children with intestinal failure.
- Understanding the long-term outcomes and family adaptation is essential for comprehensive care.
Purpose of the Study:
- To conduct a national survey of children receiving HPN in Sweden.
- To assess growth, educational attainment, and family adaptation in this cohort.
Main Methods:
- A national survey of all children identified on HPN through hospital pharmacy distributors in Sweden.
- Data collection on indications for HPN, linear growth, school attendance, and family dynamics.
Main Results:
- The study included children with chronic intestinal pseudo-obstruction and short bowel syndrome.
- Nine children exhibited normal linear growth, and all school-aged children attended appropriate classes.
- Families demonstrated good adaptation, with one reported divorce and the birth of younger siblings during the study period.
Conclusions:
- Children on HPN in Sweden achieve normal growth and educational milestones.
- Families can successfully adapt to the challenges of HPN, supporting positive child development.
- HPN is a viable long-term treatment option for pediatric intestinal failure, enabling children to thrive.
Abstract:
This study represents a national survey of all children identified on home parenteral nutrition (HPN) in Sweden via all hospital pharmacy distributors. Indications for HPN from this sample were chronic intestinal pseudo obstruction (n = 5) and short bowel syndrome (n = 7). Linear growth was normal in 9 children and all school-age children attend classes at age-relevant levels. Families appear to have adapted well. There was one divorce among these families, and over the course of the HPN child's illness, younger siblings were born.