Related Experiment Videos
Users evaluate LupusLine, a telephone peer counseling service
R Horton1, M G Peterson, S Powell
1Department of Patient Care and Quality Management, Hospital for Special Surgery, New York, NY 10021, USA.
Summary
LupusLine, a peer support service for systemic lupus erythematosus (SLE), demonstrated high user satisfaction and positive impacts on emotional well-being. This telephone-based model offers accessible, low-cost psychosocial support for SLE patients.
Area of Science:
- Health Services Research
- Patient Support Programs
- Psychosocial Oncology
Background:
- Systemic lupus erythematosus (SLE) presents complex psychosocial challenges.
- Ongoing emotional support is crucial for managing SLE.
- Existing support services may have limitations in accessibility and cost.
Purpose of the Study:
- To evaluate the utilization and user satisfaction of LupusLine, a pilot peer counseling service for SLE patients.
- To determine the impact of LupusLine on users' emotional well-being and coping mechanisms.
Main Methods:
- A 72-item structured questionnaire was administered via telephone to 153 respondents.
- Interviewers were trained specifically for data collection.
- The questionnaire underwent pilot testing and face validity review by health professionals.
Main Results:
- Most users were women with SLE seeking support for physical changes, depression, and anxiety.
- 41% of respondents made 6 or more calls.
- 92% reported at least moderate satisfaction; over 60% attributed positive emotional changes to LupusLine.
Conclusions:
- Telephone-based peer support networks like LupusLine can significantly benefit individuals managing SLE.
- The at-home accessibility and low cost of volunteer-based interventions are valuable in the current healthcare landscape.