Chronically ill children coping with repeated hospitalizations: their perceptions and suggested interventions
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1Division of Neurology, Hospital for Sick Children, Toronto, Ontario, Canada.
Insights
Chronically ill children develop effective coping strategies for repeated hospitalizations. Support from healthcare professionals, family, and friends significantly enhances their ability to manage hospital experiences.
Area of Science:
- Pediatric Psychology
- Child Health Research
- Qualitative Health Research
Background:
- Recurrent hospitalizations pose unique challenges for chronically ill children.
- Understanding children's coping mechanisms is crucial for improving healthcare experiences.
Purpose of the Study:
- To explore the coping strategies of chronically ill children undergoing repeated hospitalizations.
- To identify how others can assist these children in managing their hospital experiences.
Main Methods:
- Grounded theory methodology was employed.
- Data collection involved audiotaped interviews, drawing, and journaling with six children (ages 10-13).
Main Results:
- Children identified hospitalization stressors and utilized cognitive and behavioral coping strategies.
- Hospital personnel, family, and friends were key resources enhancing coping.
- The hospital environment's impact on coping was illustrated.
Conclusions:
- Chronically ill children develop a repertoire of coping strategies and utilize social support systems.
- Familiarity, knowledge, and supportive healthcare professionals enhance children's coping during hospitalization.
Abstract:
This qualitative research study used grounded theory methodology to learn from chronically ill children who are repeatedly hospitalized how they cope and how they feel others can assist them to cope with their recurrent hospital experiences. Six hospitalized children, ages 10 to 13 years, with various chronic conditions participated in an audiotaped interview, completed a drawing and kept a journal. The subjects identified their perceived stressors of hospitalization; revealed their use of both cognitive and behavioral coping strategies; described how hospital personnel, family, and friends enhanced their coping; and illustrated the impact of the hospital environment on their coping process. From comparison of the data, it is theorized that chronically ill children who are repeatedly hospitalized become adept at identifying and implementing a repertoire of coping strategies, accessing family and friends as resources in the coping process, developing patterns of coping with their parents, and utilizing the hospital environment to promote coping. Their coping is enhanced by familiarity and knowledge and by the respect and patience of gentle, supportive, and competent health care professionals.
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