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Orphanet Journal of Rare Diseases
|
March 19, 2021
Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases
Annemarie E M Post, Thomas Klockgether, G Bernhard Landwehrmeyer, et al.
JMIR Formative Research
|
June 29, 2022
Monitoring and Managing Lifestyle Behaviors Using Wearable Activity Trackers: Mixed Methods Study of Views From the Huntington Disease Community
Philippa Morgan-Jones, Annabel Jones, Monica Busse, et al.
Orphanet Journal of Rare Diseases
|
January 31, 2023
What we don't need to prove but need to do in multidisciplinary treatment and care in Huntington's disease: a position paper
Alzbeta Mühlbӓck, Marleen van Walsem, Martha Nance, et al.
Neurology. Clinical Practice
|
April 3, 2025
Suicidal Ideation and Sleep Disturbances Among People With Huntington Disease: Evidence From the HDBOI Study
Idaira Rodríguez Santana, Samuel A Frank, Tiago A Mestre, et al.
Neurology. Clinical Practice
|
August 20, 2024
Long-Term Health Outcomes of Huntington Disease and the Impact of Future Disease-Modifying Treatments: A Decision-Modeling Analysis
Gregory F Guzauskas, Sarah J Tabrizi, Jeffrey D Long, et al.
Journal of Huntington'S Disease
|
May 21, 2026
The holistic burden of Huntington's disease: A qualitative study of multigenerational impact on individuals and family caregivers across Europe
Charlie Albert Smith, Savita Bakhshi Anand, Astri Arnesen, et al.
European Journal of Neurology
|
November 24, 2022
Economic burden of Huntington disease in Europe and the USA: Results from the Huntington's Disease Burden of Illness study
Idaira Rodríguez-Santana, Tiago Mestre, Ferdinando Squitieri, et al.
Neurology. Clinical Practice
|
January 20, 2025
Improving the Clinical Diagnostic Criteria for Genetically Confirmed Adult-Onset Huntington Disease: Considering Nonmotor Presentations
Ciaran M Considine, Clare M Eddy, Samuel A Frank, et al.
European Journal of Neurology
|
March 28, 2024
General neurology: Current challenges and future implications
Claudio Lino Alberto Bassetti, Alice Accorroni, Astri Arnesen, et al.
Journal of Neurology
|
June 11, 2026
Development and validation of the first needs-based quality of life measure for individuals with manifest Huntington's disease
Isobel Spray, Mariusz T Grzeda, Jeanette Thorpe, et al.
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Search research articles
Search
Showing results (1-10 of 12) with videos related to
Sort By:
Page
of 2
Orphanet Journal of Rare Diseases
|
March 19, 2021
Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases
Annemarie E M Post, Thomas Klockgether, G Bernhard Landwehrmeyer, et al.
JMIR Formative Research
|
June 29, 2022
Monitoring and Managing Lifestyle Behaviors Using Wearable Activity Trackers: Mixed Methods Study of Views From the Huntington Disease Community
Philippa Morgan-Jones, Annabel Jones, Monica Busse, et al.
Orphanet Journal of Rare Diseases
|
January 31, 2023
What we don't need to prove but need to do in multidisciplinary treatment and care in Huntington's disease: a position paper
Alzbeta Mühlbӓck, Marleen van Walsem, Martha Nance, et al.
Neurology. Clinical Practice
|
April 3, 2025
Suicidal Ideation and Sleep Disturbances Among People With Huntington Disease: Evidence From the HDBOI Study
Idaira Rodríguez Santana, Samuel A Frank, Tiago A Mestre, et al.
Neurology. Clinical Practice
|
August 20, 2024
Long-Term Health Outcomes of Huntington Disease and the Impact of Future Disease-Modifying Treatments: A Decision-Modeling Analysis
Gregory F Guzauskas, Sarah J Tabrizi, Jeffrey D Long, et al.
Journal of Huntington'S Disease
|
May 21, 2026
The holistic burden of Huntington's disease: A qualitative study of multigenerational impact on individuals and family caregivers across Europe
Charlie Albert Smith, Savita Bakhshi Anand, Astri Arnesen, et al.
European Journal of Neurology
|
November 24, 2022
Economic burden of Huntington disease in Europe and the USA: Results from the Huntington's Disease Burden of Illness study
Idaira Rodríguez-Santana, Tiago Mestre, Ferdinando Squitieri, et al.
Neurology. Clinical Practice
|
January 20, 2025
Improving the Clinical Diagnostic Criteria for Genetically Confirmed Adult-Onset Huntington Disease: Considering Nonmotor Presentations
Ciaran M Considine, Clare M Eddy, Samuel A Frank, et al.
European Journal of Neurology
|
March 28, 2024
General neurology: Current challenges and future implications
Claudio Lino Alberto Bassetti, Alice Accorroni, Astri Arnesen, et al.
Journal of Neurology
|
June 11, 2026
Development and validation of the first needs-based quality of life measure for individuals with manifest Huntington's disease
Isobel Spray, Mariusz T Grzeda, Jeanette Thorpe, et al.
Page
of 2