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Health and Quality of Life Outcomes|August 30, 2024
Development of a novel patient reported outcome measure for health-related quality of life in amyotrophic lateral sclerosis (PROQuALS): study protocolJill Carlton, Philip Powell, Donna Rowen, et al.Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|September 4, 2023
IMPACT-ALS: summary of results from a European survey of people living with ALSEilis Conroy, Beatriz Vélez-Gómez, David O'Brien, et al.Neurogenetics|November 27, 2008
New pedigrees and novel mutation expand the phenotype of REEP1-associated hereditary spastic paraplegia (HSP)Channa Hewamadduma, Christopher McDermott, Janine Kirby, et al.Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|October 5, 2023
Misdiagnosis of amyotrophic lateral sclerosis in clinical practice in Europe and the USA: a patient chart review and physician surveyNamita A Goyal, Kerina Bonar, Natasa Savic, et al.Neurodegenerative Disease Management|February 18, 2026
An implementation study of a remote monitoring platform to increase access to specialist care in motor neuron diseaseLiam Knox, Polly Kennedy, Deirdre Gilsenan, et al.Clinical Nutrition ESPEN|May 27, 2022
Understanding the current nutritional management for people with amyotrophic lateral sclerosis - A mapping reviewMunira Essat, Elizabeth Coates, Mark Clowes, et al.Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|June 30, 2021
ALSUntangled #62: vitamin CRichard Bedlack, Paul Barkhaus, Greg Carter, et al.Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|October 28, 2021
Fatigue and anxiety mediate the effect of dyspnea on quality of life in amyotrophic lateral sclerosisCarolyn Young, John Ealing, Christopher McDermott, et al.Clinical Nutrition ESPEN|September 22, 2023
A critical view of the use of predictive energy equations for the identification of hypermetabolism in motor neuron disease: A pilot studySarah Roscoe, Ellie Skinner, Elaine Kabucho Kibirige, et al.Journal of Medical Engineering & Technology|July 19, 2022
Co-design of digital learning resources for care workers: reflections on the neurocare knowhow projectCathy Soreny, Philippa Takhar, Emma Vickers, et al.Pageof 8