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Journal of Bone and Mineral Research : the Official Journal of the American Society for Bone and Mineral Research
|
June 25, 2016
Prognostic Factors From an Epidemiologic Evaluation of Fibrous Dysplasia of Bone in a Modern Cohort: The FRANCEDYS Study
Johanna Benhamou, Deborah Gensburger, Claude Messiaen, et al.
Orphanet Journal of Rare Diseases
|
November 14, 2018
Federating patients identities: the case of rare diseases
Meriem Maaroufi, Paul Landais, Claude Messiaen, et al.
Journal of the American Medical Informatics Association : JAMIA
|
November 6, 2021
The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease
Anne-Sophie Jannot, Claude Messiaen, Ahlem Khatim, et al.
Journal of the American Medical Informatics Association : JAMIA
|
July 20, 2014
A methodology for a minimum data set for rare diseases to support national centers of excellence for healthcare and research
Rémy Choquet, Meriem Maaroufi, Albane de Carrara, et al.
Orphanet Journal of Rare Diseases
|
December 9, 2022
Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study
Louis Soussand, Mathieu Kuchenbuch, Claude Messiaen, et al.
Orphanet Journal of Rare Diseases
|
July 3, 2023
Overview of patients' cohorts in the French National rare disease registry
Thibaut Pichon, Claude Messiaen, Louis Soussand, et al.
Studies in Health Technology and Informatics
|
August 28, 2014
Patient information, consents and privacy protection scheme for an information system dedicated to pervasive developmental disorders
Mohamed Ben Said, Laurence Robel, Claude Messiaen, et al.
European Journal of Neurology
|
April 22, 2026
Characteristics of Patients with Myasthenia Gravis in the French Rare Disease Registry
Jean-Philippe Camdessanche, Andoni Echaniz-Laguna, Guilhem Solé, et al.
Neuromuscular Disorders : NMD
|
October 19, 2025
Prevalence of pediatric neuromuscular disorders in the Southwest region of France
Maelle Biotteau, Claude Messiaen, Elisabeth Wallach, et al.
Rheumatology International
|
July 12, 2023
New insights into epidemiological data and impact of the COVID-19 pandemic on IgA vasculitis in children and adults: a French nationwide cohort
Valentin Maisons, Yanis Ramdani, Antoine Hankard, et al.
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Search research articles
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Showing results (1-10 of 18) with videos related to
Sort By:
Page
of 2
Journal of Bone and Mineral Research : the Official Journal of the American Society for Bone and Mineral Research
|
June 25, 2016
Prognostic Factors From an Epidemiologic Evaluation of Fibrous Dysplasia of Bone in a Modern Cohort: The FRANCEDYS Study
Johanna Benhamou, Deborah Gensburger, Claude Messiaen, et al.
Orphanet Journal of Rare Diseases
|
November 14, 2018
Federating patients identities: the case of rare diseases
Meriem Maaroufi, Paul Landais, Claude Messiaen, et al.
Journal of the American Medical Informatics Association : JAMIA
|
November 6, 2021
The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease
Anne-Sophie Jannot, Claude Messiaen, Ahlem Khatim, et al.
Journal of the American Medical Informatics Association : JAMIA
|
July 20, 2014
A methodology for a minimum data set for rare diseases to support national centers of excellence for healthcare and research
Rémy Choquet, Meriem Maaroufi, Albane de Carrara, et al.
Orphanet Journal of Rare Diseases
|
December 9, 2022
Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study
Louis Soussand, Mathieu Kuchenbuch, Claude Messiaen, et al.
Orphanet Journal of Rare Diseases
|
July 3, 2023
Overview of patients' cohorts in the French National rare disease registry
Thibaut Pichon, Claude Messiaen, Louis Soussand, et al.
Studies in Health Technology and Informatics
|
August 28, 2014
Patient information, consents and privacy protection scheme for an information system dedicated to pervasive developmental disorders
Mohamed Ben Said, Laurence Robel, Claude Messiaen, et al.
European Journal of Neurology
|
April 22, 2026
Characteristics of Patients with Myasthenia Gravis in the French Rare Disease Registry
Jean-Philippe Camdessanche, Andoni Echaniz-Laguna, Guilhem Solé, et al.
Neuromuscular Disorders : NMD
|
October 19, 2025
Prevalence of pediatric neuromuscular disorders in the Southwest region of France
Maelle Biotteau, Claude Messiaen, Elisabeth Wallach, et al.
Rheumatology International
|
July 12, 2023
New insights into epidemiological data and impact of the COVID-19 pandemic on IgA vasculitis in children and adults: a French nationwide cohort
Valentin Maisons, Yanis Ramdani, Antoine Hankard, et al.
Page
of 2