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Research and Practice in Thrombosis and Haemostasis|October 19, 2023
Patient-relevant health outcomes for von Willebrand disease, platelet function disorders, and rare bleeding disorders: a Delphi studyEvelien S van Hoorn, Hester F Lingsma, Marjon H Cnossen, et al.
International Journal of Health Policy and Management|April 15, 2024
Value-Based Integrated Care: A Systematic Literature ReviewEvelien S van Hoorn, Lizhen Ye, Nikki van Leeuwen, et al.
Journal of Thrombosis and Haemostasis : JTH|January 25, 2023
The ethics of gene therapy for hemophilia: a narrative reviewLieke Baas, Rieke van der Graaf, Evelien S van Hoorn, et al.
Plos One|June 3, 2024
Patient experiences with value-based healthcare interventions at the HIV outpatient clinic of the Erasmus Medical CentreEvelien S van Hoorn, Nadine Y Bassant, Hester F Lingsma, et al.
Medical Decision Making : an International Journal of the Society for Medical Decision Making|June 29, 2025
Facilitators and Barriers of the Use of Prognostic Models for Clinical Decision Making in Acute Neurologic Care: A Systematic ReviewEllen X Y Hu, Evelien S van Hoorn, Isabel R A Retel Helmrich, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|January 18, 2022
Patient-reported outcomes in autosomal inherited bleeding disorders: A systematic literature reviewEvelien S van Hoorn, Maite E Houwing, Wala Al Arashi, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|May 19, 2025
Experiences and Needs Regarding Information Provision in Children With Haemophilia: A Qualitative Study on Caregivers' and Healthcare Providers' PerspectivesCaroline M A Mussert, Nadia C W Kamminga, Evelien S van Hoorn, et al.
Research and Practice in Thrombosis and Haemostasis|December 1, 2021
Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevanceIsolde A R Kuijlaars, Lorynn Teela, Lize F D van Vulpen, et al.
Research and Practice in Thrombosis and Haemostasis|September 27, 2023
Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banksLorynn Teela, Michiel A J Luijten, Isolde A R Kuijlaars, et al.
Research and Practice in Thrombosis and Haemostasis|July 30, 2024
Psychometrics of patient-reported outcomes measurement information system in von Willebrand disease, inherited platelet function disorders, and rare bleeding disordersEvelien S van Hoorn, Sterre P E Willems, Wala Al Arashi, et al.
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