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Genome Biology
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September 16, 2014
Building a data sharing model for global genomic research
Patricia Kosseim, Edward S Dove, Carman Baggaley, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
September 29, 2018
Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study
Nisha Shah, Victoria Coathup, Harriet Teare, et al.
European Journal of Human Genetics : EJHG
|
February 1, 2019
Motivations for data sharing-views of research participants from four European countries: A DIRECT study
Nisha Shah, Victoria Coathup, Harriet Teare, et al.
Journal of Medical Ethics
|
May 28, 2011
From genomic databases to translation: a call to action
Bartha Maria Knoppers, Jennifer R Harris, Paul R Burton, et al.
Orphanet Journal of Rare Diseases
|
November 30, 2016
Health-related quality of life and a cost-utility simulation of adults in the UK with osteogenesis imperfecta, X-linked hypophosphatemia and fibrous dysplasia
Lydia Forestier-Zhang, Laura Watts, Alison Turner, et al.
BMC Medical Ethics
|
June 5, 2016
Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
J Patrick Woolley, Michelle L McGowan, Harriet J A Teare, et al.
European Journal of Human Genetics : EJHG
|
January 26, 2012
Legislation on direct-to-consumer genetic testing in seven European countries
Pascal Borry, Rachel E van Hellemondt, Dominique Sprumont, et al.
Medical Law International
|
September 26, 2017
Exploring the potential duty of care in clinical genomics under UK law
Colin Mitchell, Corrette Ploem, Victoria Chico, et al.
Journal of Empirical Research on Human Research Ethics : JERHRE
|
November 16, 2019
Dynamic Consent: An Evaluation and Reporting Framework
Megan Prictor, Megan A Lewis, Ainsley J Newson, et al.
Biopreservation and Biobanking
|
April 16, 2016
Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?
Isabelle Budin-Ljøsne, Deborah Mascalzoni, Sirpa Soini, et al.
Page
of 10
Search research articles
Search
Showing results (61-70 of 99) with videos related to
Sort By:
Page
of 10
Genome Biology
|
September 16, 2014
Building a data sharing model for global genomic research
Patricia Kosseim, Edward S Dove, Carman Baggaley, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
September 29, 2018
Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study
Nisha Shah, Victoria Coathup, Harriet Teare, et al.
European Journal of Human Genetics : EJHG
|
February 1, 2019
Motivations for data sharing-views of research participants from four European countries: A DIRECT study
Nisha Shah, Victoria Coathup, Harriet Teare, et al.
Journal of Medical Ethics
|
May 28, 2011
From genomic databases to translation: a call to action
Bartha Maria Knoppers, Jennifer R Harris, Paul R Burton, et al.
Orphanet Journal of Rare Diseases
|
November 30, 2016
Health-related quality of life and a cost-utility simulation of adults in the UK with osteogenesis imperfecta, X-linked hypophosphatemia and fibrous dysplasia
Lydia Forestier-Zhang, Laura Watts, Alison Turner, et al.
BMC Medical Ethics
|
June 5, 2016
Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
J Patrick Woolley, Michelle L McGowan, Harriet J A Teare, et al.
European Journal of Human Genetics : EJHG
|
January 26, 2012
Legislation on direct-to-consumer genetic testing in seven European countries
Pascal Borry, Rachel E van Hellemondt, Dominique Sprumont, et al.
Medical Law International
|
September 26, 2017
Exploring the potential duty of care in clinical genomics under UK law
Colin Mitchell, Corrette Ploem, Victoria Chico, et al.
Journal of Empirical Research on Human Research Ethics : JERHRE
|
November 16, 2019
Dynamic Consent: An Evaluation and Reporting Framework
Megan Prictor, Megan A Lewis, Ainsley J Newson, et al.
Biopreservation and Biobanking
|
April 16, 2016
Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?
Isabelle Budin-Ljøsne, Deborah Mascalzoni, Sirpa Soini, et al.
Page
of 10