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Journal of Scleroderma and Related Disorders|November 18, 2024
Association of support group leader experience with Scleroderma Patient-centered Intervention Network Support group Leader EDucation Program outcomes: Secondary analysis of a two-arm parallel partially nested randomized controlled trialBrett D Thombs, Brooke Levis, Marie-Eve Carrier, et al.
ACR Open Rheumatology|April 6, 2026
Development and Validation of the Brief Support Group Leader Self-Efficacy Scale Among Scleroderma Peer Support Group LeadersSabrina Provencher, Daphna Harel, Richard S Henry, et al.
BMJ Open|November 14, 2019
Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trialBrett D Thombs, Laura Dyas, Mia Pépin, et al.
Trials|December 14, 2019
Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) ProgramBrett D Thombs, Kylene Aguila, Laura Dyas, et al.
Arthritis Care & Research|May 10, 2018
Randomized Controlled Trial to Evaluate an Internet-Based Self-Management Program in Systemic SclerosisDinesh Khanna, Jennifer Serrano, Veronica J Berrocal, et al.
Orphanet Journal of Rare Diseases|October 29, 2022
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trialBrett D Thombs, Brooke Levis, Marie-Eve Carrier, et al.
Translational Behavioral Medicine|March 31, 2023
Exploring research team members' and trial participants' perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview studyAmanda Wurz, Kelsey Ellis, Delaney Duchek, et al.
Disability and Rehabilitation|January 28, 2023
A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team membersAmanda Wurz, Delaney Duchek, Kelsey Ellis, et al.
Journal of Psychosomatic Research|June 11, 2020
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patientsBrett D Thombs, Linda Kwakkenbos, Marie-Eve Carrier, et al.
The Lancet. Rheumatology|April 26, 2021
Effects of a multi-faceted education and support programme on anxiety symptoms among people with systemic sclerosis and anxiety during COVID-19 (SPIN-CHAT): a two-arm parallel, partially nested, randomised, controlled trialBrett D Thombs, Linda Kwakkenbos, Brooke Levis, et al.
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