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Medical Care|April 16, 2019
Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIKLotte Haverman, Hedy A van Oers, Maud M van Muilekom, et al.Journal of Patient-Reported Outcomes|September 30, 2024
Educating patients about patient-reported outcomes-are we there yet?Elizabeth Unni, Maud M van Muilekom, Kate Absolom, et al.Orphanet Journal of Rare Diseases|September 28, 2024
PROs for RARE: protocol for development of a core patient reported outcome set for individuals with genetic intellectual disabilityNadia Y van Silfhout, Maud M van Muilekom, Clara D van Karnebeek, et al.Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation|July 29, 2021
Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portalMaud M van Muilekom, Lorynn Teela, Hedy A van Oers, et al.Pediatric Blood & Cancer|September 26, 2023
Impact of hospitalization for vaso-occlusive crisis on health-related quality of life in children with sickle cell diseaseCaroline Vuong, Ibtissame Moussa, Maud M van Muilekom, et al.Journal of Intellectual Disability Research : JIDR|January 28, 2026
What Matters Most? Developing a Core Patient Reported Outcome Set for Individuals With Genetic Intellectual Disabilities: An International Delphi StudyNadia Y van Silfhout, Maud M van Muilekom, Leonie A Menke, et al.Psychological Assessment|July 1, 2021
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Anger Scale in the Dutch general populationMaud M van Muilekom, Michiel A J Luijten, Raphaele R L van Litsenburg, et al.Journal of Neurodevelopmental Disorders|August 1, 2025
Patient reported outcomes used in clinical trials and core outcome sets for individuals with genetic intellectual disability: a scoping reviewNadia Y van Silfhout, Maud M van Muilekom, Clara D van Karnebeek, et al.European Journal of Pediatrics|June 2, 2026
Psychometric evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) in pediatric sickle cell disease in EuropeMaite E Houwing, Michiel A J Luijten, Madieke J Muntendam, et al.Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation|May 30, 2020
Clinicians' perspective on the implemented KLIK PROM portal in clinical practiceLorynn Teela, Maud M van Muilekom, Lieke H Kooij, et al.Pageof 2