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Journal of Empirical Research on Human Research Ethics : JERHRE|February 21, 2018
Personal Control Over Decisions to Participate in Research by Persons With Histories of Both Substance Use Disorders and Criminal Justice SupervisionDonna T Chen, Tomohiro M Ko, Ashleigh A Allen, et al.Circulation. Genomic and Precision Medicine|July 13, 2021
Impact of Genetic Testing for Cardiomyopathy on Emotional Well-Being and Family Dynamics: A Study of Parents and AdolescentsPriyanka Ahimaz, Maya Sabatello, Min Qian, et al.American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation|December 6, 2021
A Participant-Centered Approach to Understanding Risks and Benefits of Participation in Research Informed by the Kidney Precision Medicine ProjectCatherine R Butler, Paul S Appelbaum, Heather Ascani, et al.The Hastings Center Report|April 20, 2023
Wrestling with Social and Behavioral Genomics: Risks, Potential Benefits, and Ethical ResponsibilityMichelle N Meyer, Paul S Appelbaum, Daniel J Benjamin, et al.Perspectives in Biology and Medicine|September 27, 2023
An Ethical Framework for Research Using Genetic AncestryAnna C F Lewis, Santiago J Molina, Paul S Appelbaum, et al.Science (New York, N.Y.)|April 14, 2022
Getting genetic ancestry right for science and societyAnna C F Lewis, Santiago J Molina, Paul S Appelbaum, et al.Clinical Journal of the American Society of Nephrology : CJASN|December 1, 2020
Integrating Patient Priorities with Science by Community Engagement in the Kidney Precision Medicine ProjectKatherine R Tuttle, Richard Knight, Paul S Appelbaum, et al.Journal of Genetic Counseling|October 19, 2021
Do research participants share genomic screening results with family members?Julia Wynn, Hila Milo Rasouly, Tania Vasquez-Loarte, et al.Genetics in Medicine : Official Journal of the American College of Medical Genetics|April 2, 2019
Evaluation of the cost and effectiveness of diverse recruitment methods for a genetic screening studyHila Milo Rasouly, Julia Wynn, Maddalena Marasa, et al.Genetics in Medicine : Official Journal of the American College of Medical Genetics|May 2, 2019
Correction: Evaluation of the cost and effectiveness of diverse recruitment methods for a genetic screening studyHila Milo Rasouly, Julia Wynn, Maddalena Marasa, et al.Pageof 37