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Journal of Paediatrics and Child Health
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September 5, 2022
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope
Ann Me Bye, Fleur A Le Marne, Erin Beavis, et al.
Journal of Paediatrics and Child Health
|
September 7, 2022
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty
Suzanne M Nevin, Erin Beavis, Rebecca Macintosh, et al.
European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society
|
March 3, 2022
Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy
Suzanne M Nevin, Claire E Wakefield, Fleur Le Marne, et al.
PEC Innovation
|
June 26, 2023
Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies
Suzanne M Nevin, Claire E Wakefield, Ann Dadich, et al.
Journal of Paediatrics and Child Health
|
February 3, 2025
Navigating an Uninformative Genomic Test Result: A Practical Guide
Laura St Clair, Claire Wong, Christopher Elliot, et al.
Developmental Medicine and Child Neurology
|
June 19, 2026
Codesigned toolkit for multidisciplinary clinicians caring for children with severe neurological impairment
Suzanne M Nevin, Fleur A Le Marne, Nancy E Briggs, et al.
European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society
|
November 13, 2025
Connect, pause and reflect: Multidisciplinary clinicians' shared challenges and sustaining strategies caring for children with Severe Neurological Impairment
Suzanne M Nevin, Fleur A Le Marne, Lauren Kelada, et al.
Journal of Paediatrics and Child Health
|
August 24, 2021
Paediatric genomic testing: Navigating genomic reports for the general paediatrician
Margit Shah, Arthavan Selvanathan, Gareth Baynam, et al.
BMJ Open
|
October 26, 2022
Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol
Eden G Robertson, Lauren Kelada, Stephanie Best, et al.
European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society
|
October 13, 2023
"Somewhere to turn to with my questions": A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy
Eden G Robertson, Natalie J Roberts, Fleur Le Marne, et al.
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of 6
Search research articles
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Showing results (11-20 of 51) with videos related to
Sort By:
Page
of 6
Journal of Paediatrics and Child Health
|
September 5, 2022
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope
Ann Me Bye, Fleur A Le Marne, Erin Beavis, et al.
Journal of Paediatrics and Child Health
|
September 7, 2022
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty
Suzanne M Nevin, Erin Beavis, Rebecca Macintosh, et al.
European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society
|
March 3, 2022
Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy
Suzanne M Nevin, Claire E Wakefield, Fleur Le Marne, et al.
PEC Innovation
|
June 26, 2023
Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies
Suzanne M Nevin, Claire E Wakefield, Ann Dadich, et al.
Journal of Paediatrics and Child Health
|
February 3, 2025
Navigating an Uninformative Genomic Test Result: A Practical Guide
Laura St Clair, Claire Wong, Christopher Elliot, et al.
Developmental Medicine and Child Neurology
|
June 19, 2026
Codesigned toolkit for multidisciplinary clinicians caring for children with severe neurological impairment
Suzanne M Nevin, Fleur A Le Marne, Nancy E Briggs, et al.
European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society
|
November 13, 2025
Connect, pause and reflect: Multidisciplinary clinicians' shared challenges and sustaining strategies caring for children with Severe Neurological Impairment
Suzanne M Nevin, Fleur A Le Marne, Lauren Kelada, et al.
Journal of Paediatrics and Child Health
|
August 24, 2021
Paediatric genomic testing: Navigating genomic reports for the general paediatrician
Margit Shah, Arthavan Selvanathan, Gareth Baynam, et al.
BMJ Open
|
October 26, 2022
Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol
Eden G Robertson, Lauren Kelada, Stephanie Best, et al.
European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society
|
October 13, 2023
"Somewhere to turn to with my questions": A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy
Eden G Robertson, Natalie J Roberts, Fleur Le Marne, et al.
Page
of 6