Jenny Downs
84PUBLICATIONS
155CO-AUTHORS

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Publications (84)
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|Apr 01, 2026
From QI-disability to QID-12: creating a brief proxy-report measure of quality of life for children with intellectual disability.Melissa K Licari, Andrew J O Whitehouse, Natasha N Ludwig
|Jan 15, 2026
Functional skills in MECP2 duplication syndrome: developmental dynamics and regression.Daniel Ta, Jenny Downs, Gareth Baynam
|Jan 14, 2026
Caregiver-reported quality of life in individuals with developmental and epileptic encephalopathy and other severe neurodevelopmental encephalopathies.Natasha N Ludwig, Melissa K Licari, Mary Wojnaroski
|Jan 07, 2026
Longitudinal Rett syndrome behaviour questionnaire scores and their associations with genotype and trajectories of mobility, weight and seizure frequency status.Jenny Downs, Kingsley Wong, Dilesh Doshi
|Dec 09, 2025
Development and initial validation of the Communication Inventory Disability - Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder.Jenny Downs, Jessica Keeley, Peter Jacoby
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Frequent Collaborators
31 joint publications
Helen Margaret Leonard
9 joint publications
Peter Jacoby
7 joint publications
Scott T Demarest
7 joint publications
Amanda Marie Blackmore
6 joint publications
Jessica Keeley
6 joint publications
Tim A Benke
6 joint publications
JayEtta Z Hecker
6 joint publications
Kingsley Wong
6 joint publications
Natasha N Ludwig
6 joint publications
Gabrielle Conecker