Bruna Dos Santos Vieira
3PUBLICATIONS
27CO-AUTHORS
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Publications (3)
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|Oct 01, 2025
The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience.Nawel Lalout, Mark D Wilkinson, Dagmar Wandrei
|May 20, 2022
Domain-Specific Common Data Elements for Rare Disease Registration: Conceptual Approach of a European Joint Initiative Toward Semantic Interoperability in Rare Disease Research.Haitham Abaza, Dennis Kadioglu, Simona Martin
|Sep 05, 2021
The de novo FAIRification process of a registry for vascular anomalies.Karlijn H J Groenen, Annika Jacobsen, Martijn G Kersloot
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Frequent Collaborators
2 joint publications
Marco Roos
1 joint publications
Karlijn H J Groenen
1 joint publications
Annika Jacobsen
1 joint publications
Martijn G Kersloot
1 joint publications
Esther van Enckevort
1 joint publications
Rajaram Kaliyaperumal
1 joint publications
Derk L Arts
1 joint publications
Peter A C 't Hoen
1 joint publications
Ronald Cornet
1 joint publications
Leo Schultze Kool
