在临床试验和超越中以患者为中心的放射治疗的最佳实践 - 一个国家多学科共识
1Radiotherapy Department, Royal Marsden Hospital NHS Foundation Trust, UK; Institute of Cancer Research, UK; Proton Centre, University College London Hospitals, UK.
概括
以患者为中心的放射治疗需要更好的支持,明确的信息和共享的决策. 这一共识提供了改善患者护理和放射治疗实践和试验结果的建议.
科学领域:
- 在瘤学瘤学.
- 辐射疗法 辐射疗法
- 以患者为中心的护理
背景情况:
- 以患者为中心的放射治疗优先考虑患者的需求和偏好.
- 目前缺乏针对个性化放射治疗的指导方针.
- 需要一个多学科的共识,以建立最佳实践.
研究的目的:
- 为以患者为中心的放射治疗制定国家共识建议.
- 在临床试验和常规放射治疗护理中指导最佳实践.
- 在整个放射治疗过程中满足患者的需求.
主要方法:
- 成立了一个包括医疗保健专业人员和患者倡导者在内的多学科工作组.
- 对放射治疗中的信息,决策和结果进行了范围审查.
- 通过与12名患者倡导者进行商,改进了建议.
主要成果:
- 在放射治疗前,期间和之后,急需加强患者支持.
- 患者信息必须是个性化的,并与患者共同创建;共享决策 (SDM) 实施不足.
- 现实世界的数据和患者报告的结果 (PROM) 对于理解长期影响和生活质量至关重要.
结论:
- 放射治疗社区必须接受改变,以加强以患者为中心的护理.
- 建议旨在指导以患者为中心的放射治疗的最佳实践.
- 确保获得放射治疗,试验和幸存者服务的公平是优先事项.
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