怀孕期间与限制生命的胎儿条件的育儿支持干预:一个试点研究.
Denise Côté-Arsenault1, Samah Hawsawi2, Erin Denney-Koelsch3
1Saint Louis University (D.C.A.), St. Louis, Missouri, USA.
Journal of pain and symptom management
|March 19, 2025
概括
一个新的远程医疗干预,发育周产期育儿干预与限制生命的胎儿状况 (DPPI-LLFC),被证明是可行的和可以接受的父母面对限制生命的胎儿状况. 这种方法提供了一种有希望的方式来支持父母在具有挑战性的怀孕期间.
科学领域:
- 围产期心理健康问题
- 缓和护理干预措施 缓和护理干预措施
- 家庭为中心的护理.
背景情况:
- 美国目前对患有生命限制胎儿疾病 (LLFC) 的父母的标准护理强调医疗决策和可访问的产周缓解护理 (PPC),但缺乏针对日常生活经验的干预措施.
- 一个新的,以关系为中心的干预,发育周产期育儿干预与限制生命的胎儿条件 (DPPI-LLFC),是基于既定的理论框架开发的.
研究的目的:
- 评估DPPI-LLFC干预对家长,干预人员和研究小组的可行性和可接受性.
- 评估家长与干预组件的经验,以及他们完成的研究措施.
主要方法:
- 一个单臂试点研究使用了DPPI-LLFC的远程医疗服务.
- 三名干预护士 (RN-Is) 在干预的理论基础上接受了培训.
- 参与者包括继续LLFC怀孕的母亲和他们的共同父母,在整个怀孕期间每月接受一次干预会议和两个分娩后.
主要成果:
- 在13名参与家长 (8名母亲,5名父亲) 中观察到高保留率 (92%).
- 远程医疗的交付是可行的和可接受的,在真实性评估上有100%的评价者间协议,确认所有干预组件都按照设计进行交付.
- 参与者报告说,在研究结束时,怀孕焦虑减少,决策后悔和悲伤强度低至中等,并发现干预"有意义和受到赞赏".
结论:
- 远程医疗提供的DPPI-LLFC是对父母经历LLFC怀孕的可行,可接受和有价值的干预措施.
- 这种新的方法显示出改善获得和提供围产期息护理的巨大潜力.
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