社区在公共卫生领域的合作 基因素养:为公平的基因组学研究和实践共同设计教育资源的方法
Juhi Salunke1, Grace Byfield1, Sabrina N Powell1
1Department of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Public health genomics
|March 27, 2025
概括
这项研究与不同社区共同创建了公共卫生遗传学教育材料,以提高遗传素养和参与研究. 该方法促进了信任和文化相关性,解决了研究中的历史不平等问题.
科学领域:
- 遗传学和基因组学 遗传学和基因组学
- 公共卫生 公共卫生
- 传播和实施科学 传播和实施科学
背景情况:
- 由于历史上的不平等,不信任和有限的访问,遗传研究面临不平等的代表.
- 通过社区对话建立信任对于增加参与遗传研究至关重要.
- 与不同社区共同创建教育材料可以解决这些差异.
研究的目的:
- 描述一种共同创作方法,用于开发关于遗传学和基因组学的公共卫生教育材料.
- 为了提高基因素养,在普通人群中进行知情决策.
- 促进社区对话,解决参与研究的不平等问题.
主要方法:
- 涉及遗传学临床医生,研究人员和社区成员的教育模块的代共同创作.
- 利用了设计传播和可持续性框架及其适合上下文的过程.
- 确保在整个开发过程中考虑公共卫生背景和多样化的受众.
主要成果:
- 通过社区与研究人员的合作,开发了基于证据的教育材料和传播计划.
- 共同创作过程旨在提高公共卫生遗传学运动的文化适当性和相关性.
- 该方法为其他团体提供了一个模板,以加强卫生干预措施的公平性和可持续性.
结论:
- 与社区成员共同创建公共卫生遗传学材料,提高了文化相关性,并解决了研究不平等问题.
- 这种方法可以作为开发可持续,社区参与的健康干预措施的模式.
- 需要进一步的研究来评估对参与者的接受度和参与度的影响.
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