优化患者参与与患者报告的结果在整个癌症连续性的措施:一个定性研究.
Eve Seraphina Qing Yi Low1, See Mieng Tan1,2, Grace Meijuan Yang1,2,3
1Division of Supportive and Palliative Care, National Cancer Centre Singapore, Singapore.
Palliative medicine reports
|September 8, 2025
概括
患者报告的结果测量 (PROM) 在瘤学中很有价值,但面临实施挑战. 诸如多语言格式和及时反等策略可以改善患者的体验和参与PROM.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
背景情况:
- 在瘤学环境中,患者报告的结果测量 (PROM) 的常规实施是具有挑战性的.
- PROM对于加强以患者为中心的护理至关重要.
- 这项研究调查了患者在支持性护理计划中使用PROM的经验.
研究的目的:
- 探索患者在日常瘤护理中整合PROM的经验.
- 确定影响PROM采用,包容性和感知影响的因素.
- 了解患者对PROM可用性和可访问性的看法.
主要方法:
- 在新加坡国家癌症中心进行的定性现象学研究.新加坡.
- 使用危险温度计和问题列表 (DTPL) 的七名乳腺癌患者的有目的抽样.
- 半结构面试和使用实施研究综合框架进行主题分析.
主要成果:
- 患者发现DTPL验证,格式影响感知简单性.
- 多语言和混合格式增强了可访问性,但数字素养和认知负载是障碍.
- 持续的参与需要及时的反应,转诊和症状管理,尽管反应疲劳发生了.
结论:
- 成功实施PROM取决于平衡简单性,可访问性和临床相关性.
- 将PROM整合到支持性护理计划中是响应能力和改善瘤病人的结果的关键.
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