了解参与者感知到的成长和错位在在线的耻辱自我管理计划:一个定性研究
Elaine T Kiriakopoulos1, Allyson Goldstein2, Sarah J Kaden3
1The Dartmouth Institute, Geisel School of Medicine, Dartmouth College, Hanover, NH, USA; Department of Neurology, Dartmouth Health, Lebanon, NH, USA.
Epilepsy & behavior : E&B
|February 22, 2026
概括
RISE ABOVE计划帮助患者 (PWE) 管理内化耻辱感,促进意识和恢复力的增长. 然而,由于准备,内容相关性和程序设计,一些参与者经历了错位,这表明了需要改进的领域.
科学领域:
- 神经科学和心理学 神经科学和心理学
- 公共卫生和社会科学
背景情况:
- 内化耻辱显著影响了患者 (PWE) 的心理社会福祉.
- RISE ABOVE计划为PWE提供了一种自主节奏的在线解决方案,以解决内部化的耻辱感.
研究的目的:
- 探索参与者在完成RISE ABOVE在线自我管理计划后对成长和失调的看法.
- 确定PWE中有效的耻辱自我管理的促进者和障碍.
主要方法:
- 质量研究涉及20名患有的成年人,他们报告了内化耻辱感.
- 计划完成后进行了半结构化访谈,并以主题分析.
主要成果:
- 参与者报告了增加的耻辱意识,验证,情绪调节,弹性和灵活的思维.
- 发现的挑战包括:对变革的准备,内容的相关性,对内省的不适以及对社会耻辱的信念.
结论:
- RISE ABOVE被认为是PWE中耻辱自我管理的有益资源.
- 确定了程序上的局限性,建议改进领域,以提高可接受性和为有效性测试做好准备.
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